My life with CU

lifelived80 15.11.2015 05:46

I have been suffering with this for years but it has gotten much worse for the last 2 or 3 I get them in my hands and feet the most in my joints to where I can't use my hands or feet I get them in soft tissue like under arms, throat, tongue, sinus cavity, crease of my butt, you never it lol...everyone thinks I full of it expecially at work....my life revolves around staying warm or taking visteril and then I feel like crappie for 2 days like a zombie....somebody help please...this doesn't just effect me in the winter either I live with it all year round any extreme cold, hot, injury, or ect...will bring them on even stress.

lifelived80 15.11.2015 05:49

Sorry for the miss spelled and jumbled words....auto correct and fat fingers from swelling don't go we'll together

reese 10.03.2016 00:17

I am a African american women and I have been suffering with these hives for years.It has hindered my social life. I have been to many of doctors and a lot of them have no clue what CU is. I've been for allergy testing. I've changed my diet ,soap , shampoo, just about everything I could change, and still nothing.I've been through the ER numbers of times. I've had so many steroids that only works temporary.My doctor gave me a prescription of Hydroxyzine 50mg. one pill feels like Benadryl x 5. I can not function right feeling that sleepy during the day. They only seem to work with the more severe hives that grows in my face. It is so embarrassing to be scratching on all day every day. Having people scared to even stand near you thinking their going to catch something.

flintstonewitch 07.05.2016 02:35

Reese, I know the feeling. I am on hydroxyzine three times a day and Doxepin 1 time a day. At first it helped, but now it is getting worse again. I am a medical transcriptionist and have to sit and type for 8 hours a day, which makes it unbearable to walk or move my arms.

tiffsterlee39 02.06.2016 16:16

I have been living with CU for almost two years now. I feel like I go through an emotional roller coaster. Being on presdinsoe has helped me gain 50 pounds. I have been through so much in life and I refuse to let this take my life away. I am thinking about changing my diet, but there are so many suggestions that I wanted to know if anyone new where to start?

maria_kiku 19.08.2016 23:42

Yeah guys, I understand the struggle. Reese, same thing happening here, my doctors can't figure out what I seem to be allergic to. Which medication is best for you guys? My doctor only gives me aerius and it barely works, I still get a rash from time to time, he even increased my dosage. Just wondering what type of medication you guys get. Also, I am under 18 and was wondering if I'm eligible for the make a wish foundation. Thank you guys for your help.

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