Why isnt CU a disability?

suzyqcu 03.07.2014 22:02

Ive been living with severe CU for 4 years now. I break out in summer after sweating and in the winter I cannot go out at all or My blood pressure drops and my entire body is one gigantic hive. I applied for disability for this along with many other health issues and lost my case. Now appealing it all the way to the appeals council. Why do they give such a hard time to people who cannot even leave their homes without risking their lives?

martine 15.08.2014 03:31

Hi Suzyqcu, Sorry to hear about your ordeal. I reckon that they don't recognize Urticaria as a disability because very little is known about it. For the past 3 years, CU has hi-jacked my life, my body, & my mood. Almost everything I do revolves around CU! I haven't been able to make a concrete plan for anything, so in my opinion, I do believe that CU should make a person eligible for disability. I encourage you to take it all the way!

eza2194 09.09.2014 11:11

It should be considering a lot of sufferers get anaphylaxis ect leading to hospital stays. I've had days I couldn't get out of bed as standing on hived up feet was far too painful, I've had nights of no sleep due to it and I've struggled at work when my hands are swollen and covered in hives...

djs 01.10.2014 18:13

Are you in the U.S.? Is CU considered a disability under the law that qualifies one for SSD? If so, the reason you were rejected is most likely because many or most applications for disability are rejected initially ,not because you have CU. You could be run over by a truck and get rejected. I think the only person I know who applied for disability and didn’t have to file an appeal was a friend who had a brain tumor. .I don’t know the success rate of appeal but .I wish you the best of luck in terms of your appeal.CU,as we all know,is a seriously debilitating illness.

alishac 21.12.2014 03:26

Wow its so amazing to hear all of your stories...I'm feeling so alone and this helps. Anyway to talk back and for with each other?

lakersforlife 06.02.2015 08:36

Hi ...I'm here too because I needed support. ..I can't sleep thinking about when this nightmare will end...but in the meantime I'm still gonna be strong

dennisday 10.11.2015 14:58

I'm about to start my journey into getting rejected for SSD as well. Hopefully the appeal process will be successful. I've never heard of delayed pressure urticaria until I was diagnosed. I can't keep a job and totally understand the struggle others have. This truly is a debilitating disease.

flintstonewitch 07.05.2016 02:32

I too have thought about disability. I am a medical transcriptionist and the constant sitting for 8 hours and pressure on my arms and legs makes life just about unbearable. I am on Doxepin once a day and hydroxyzine 3 times a day, and still having breakthroughs. I am so glad to find this site as so many people out there say "oh you have hives" and turn away as if there is nothing to it. For years, I have been to dermatologists, infectious disease doctors, until 6 months ago when I finally told my new PCP that if I had gun I would probably use it and told him about a former doctor writing on my arm lightly with a pen and how the wheals formed where the pen touched, and the fact that sweating feels like a million bees inside stinging. He took a few tests and came back immediately and said you have pressure urticaria and cholinergic urticaria. At first the drugs helped and I was like a totally new person, but now it is getting worse again.

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maria_kiku 19.08.2016 23:33

Hi, I recently found out I have urticaria. Last year I broke out a lot and it wasn't until a few months later that my parents finally let me see a doctor. I've done a lot of blood tests but the doctors haven't figured out the cause of it yet. Since I'm not 18 yet, does this disease allow me to get a make a wish? It is very hard for me to go to school as I just end up getting a rash. I haven't received my medication for a month now and my disease has gotten worse, even my hair against my face causes a rash. It must be hard for everyone here with this disease as I understand how inconvenient and painful it is. It's hard to wake up in the morning not wanting to be in your own skin because of the pain. Hope you all get better soon.

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