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Urticariaday2017: You´re not alone

The fourth urticaria day will again take place on October 1st. This year’s urticariaday is all about “You´re not alone”.  One in four people is affected once in their lifetime by urticaria. Symptoms are most often present only for a few days or weeks – this is called acute urticaria.  However, the disease becomes chronic in many individuals. At any moment, up to 1% of the population suffers from urticaria without even getting in touch with stinging nettles. The wheals and the intolerable itching appear out of the blue and in many cases daily over months or years.

1% sounds little, but 1% is quite a lot! That means that there are around 70 millions other urticaria patients worldwide. That also means:  You´re not alone. There are many other urticaria patients in your city and in your country. You might not know them, but they are there. The urticariaday2017 aims to bring this people together. We want to encourage urticaria patients to get in touch with other patients and to join or to found a self-help support group. Encourage others! Tell others, how and where you found help so that other patients have the chance to receive early support.The bigger the community - the better

Furthermore, urticariaday is a great opportunity to raise awareness for urticaria among patients and their families, doctors, politicians, the press and the world. We want to increase available educational opportunities for other doctors, thus they can provide better care to urticaria patient. In uniting the urticaria community, you will extend your network, see that you are not alone and be able to reach out for help when needed.

Who are “we”? “We” are all of us! Patients, doctors, organizations, you and me. Each individual who participates in urticariaday2017 is part of the urticariaday network. Help us by telling others about urticariaday. Share information about urticariaday on 1. October 2017 in any way you can – twitter, facebook, or by liking this page.

Inspire others and create your own event! Why not throw an urticaria party or start a local self-help group? Perhaps you can even encourage your doctor to offer urticaria training at their clinic for other doctors. Every contribution counts. Together with us, you can help to make the urticariday successful worldwide.

Urticariaday2017 was initiated by Unev, the Urticaria Network e.V. and  daab e.V. and is proudly sponsored by GA²LEN and many other organizations throughout the world that strive to improve conditions and treatment for patients with allergies and urticaria.

The diagnosis and treatment of urticaria is a big challenge for patients and doctors, since the disease has a great variety of triggers and reasons. The cause of the disease can be identified for max. 70% of the patients after a complex series of tests. Even if doctors succeed in identifying the cause, a curative therapy is only possible for some patients, e.g. with an antibiotic treatment. All remaining cases require a symptomatic therapy. Although there are effective and well tolerated treatment methods by now, many patients still receive insufficient therapies or therapies with a lot of side effects as for example a long-term treatment with cortisone.

In order to focus more on patients who suffer from urticaria and to raise awareness for the disease and the best possible treatment, the urtikaria network – UNEV and DAAB – Deutscher Allergie- und Asthmabund (German Allergy and Asthma Association) initiate the third urticariaday worldwide on 1st October 2016.

There will be worldwide events for doctors and patients on the topic urticaria. Patients who suffer from urticaria, self-help groups, health-care professionals and everyone, who wants to participate can get information on the website www.urticariaday.org.

You can receive further information (such as interviews with experts or people affected, more detailed texts or advice for everyday life) from our press offices:

  • Deutscher Allergie- und Asthmabund e.V. – DAAB (German Allergy and Asthma Association)
    Sonja Lämmel Enable JavaScript to view protected content.
  • Urtikaria Netzwerk (Urticaria Network) – UNEV
    Prof. Dr. med Markus Magerl, Enable JavaScript to view protected content.

The DAAB was founded in 1897 and is located in Mönchengladbach. It is the largest and oldest patient organization in the field of allergies, asthma and neurodermitis. There are currently 18,000 members. The main tasks include the care for people suffering from allergy or asthma, consumer protection from dubious allergology offers, press and public relations, lobbying and liaison between different occupational groups in the field of allergology (networking). The DAAB is an independent non-profit organization.

The Urtikaria Network is a platform where patients and doctors can meet each other in order to fight urticaria together. On the website www.urtikaria.net, people suffering from urticaria or those who are interested in the disease can learn valuable facts about the clinical picture, hear the latest news and get in touch with other people affected or with “urticaria” doctors.

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